I look forward to seeing you all at the Brain Injury Awareness Day on March 21, 2012!

Schedule for March 21, 2012

10:00 AM – 1:00 PM – Brain Injury Awareness Fair, First Floor Foyer of the Rayburn House Office Building

2:30 PM – 4:00 PM – Congressional Briefing, Location to Be Announced

5:30 PM – 7:30 PM – Reception Celebrating Brain Injury Awareness Month, Location to be announced

Other Activities

BIAA

strongly encourages

everyone that plans to attend Brain Injury Awareness Day to make appointments with their Representatives and Senators to advocate for increased funding for the programs authorized through the TBI Act. Please see tips below:

Congressional Appointments

To find House of Representatives information:

www.house.gov, type in zip code to locate your

Representative

. Click on your member’s link for their Web site where you will find their address and phone number.

To find Senate information:

www.senate.gov, select state and view Senators’ individual Web sites for address and phone number.

When calling the main number of the Senator or Representative, ask to meet with the health legislative assistant (House) or the health policy staff (Senate).

• Make sure to let them know that you are a constituent
  • Ask them for a few minutes of their time on March 21, 2012 to discuss the need for increased resources for brain injury programs in their state.

Example:

Hello ______________ my name is ______________________. I am a constituent of yours and will be visiting Capitol Hill on Wednesday, March 21, 2012 as part of Brain Injury Awareness Day. Could I have a few minutes on that day to talk to you about (state’s) brain injury resources and how they affect the brain injury community in your district/state?

Navigating Capitol Hill

If you are coming in from out of town and require a hotel, below you will find a list of accommodations within a few miles of Capitol Hill:

Hyatt Regency, http://washingtonregency.hyatt.com/hyatt/hotels/index.jsp

Courtyard, Marriott, http://www.marriott.com/hotels/travel/wasny-courtyard-washington-capitol-hill-navy-yard

Capitol Hill Suites, http://www.capitolhillsuites.com

Hotel George, http://www.hotelgeorge.com

Marriott, Residence Inn, http://www.marriott.com/hotels/travel/wascp-residence-inn-washington-dc-capitol

A map of the key House and Senate buildings can be found below:

http://www.aoc.gov/cc/cc_map.cfm

BIAA encourages advocates to check with their state brain injury organizations to determine if others from their state will be attending and if so, to coordinate meetings.

BIAA will provide printed maps of the Senate and House buildings as well as easy to follow fact sheets outlining the issues that you will be advocating for in your meetings. Electronic versions will be distributed and posted to BIAA’s website in early March. BIAA will also provide color copies at the Brain Injury Awareness Fair. Please check back for updated information on Brain Injury Awareness Day! If you have any questions or concerns, please contact Amy Colberg at acolberg@biausa.org.

Neonatal encephalopathy, or disturbed neurological functioning in a term infant, affects between 1 and 7 babies out of 1000 live births. It causes permanent disability in terms of cognitive and motor development in 15-20% of affected newborns. An MRI scan can help predict outcomes for infants with brain injury, with increasing levels of accuracy.

A recent study found that:

• The presence of brainstem lesions is predictive of mortality. Close to half of infants with these lesions die within the first three years of life.
• Mesencephalic and pontine lesions, alone or in combination, are also associated with high rates of mortality.
• The severity of damage to basal ganglia and thalamus (BGT) is predictive of motor impairment, with 89% accuracy.
• BGT is closely associated with cerebral palsy (CP)—the worse the BGT injury, the higher the risk of CP. Infants with severe BGT injuries have near universal rates of CP.
• Damage to the white matter, cortex, and brainstem is not associated with motor impairment.

Further study of these associations shows promise in improving outcomes.

Inder, TE. Predicting outcomes after perinatal brain injury. Nature. (October 2011).

Soccer is has been implicated in head and spinal injuries, both from head to head contact and also head to ball contact. Soccer heading, in which the athlete purposefully hits the ball with his/her head, has frequently led to concussions or mild traumatic brain injuries. Researchers conclude that soccer heading should also be at least somewhat related to cognitive deficits.

In a study of youth soccer, computerized cognitive tests were given to both boys and girls who had low, moderate, or high rates of soccer heading. Although the study did not find significant differences in cognition over the low, moderate, or high levels, they did find a difference between boys and girls. Girls generally performed better on cognitive tests than boys.

Past research does support that girls will perform better than boys on some, but not all, cognitive tests. This study found some factors that may be attributed directly to soccer heading. Taller players are chosen more often by their coaches to use soccer heading techniques. And, the boys also had more exposure to soccer heading than girls.

Kontos AP, Dolese A, Elbin III RJ, Covassin T, & Warren BL. Relationship of soccer heading to computerized neurocognitive performance and symptoms among female and male youth soccer players. Brain Injury. (October 2011).

On November 7, 2009, the House of Representatives approved their health care reform overhaul package by a vote of 220-215. The bill includes the provisions below: (provided by Congressional Quarterly, CQ Today)

Coverage Requirements

Individual Mandate

• Requires nearly all individuals to obtain health care coverage beginning in 2013.
• Permits individuals to keep their current health plan as a “grandfathered” plan.
• Excludes from the mandate those exempt from filing income tax returns and others who receive a hardship waiver.
• Subjects those who do not obtain coverage to a penalty tax of 2.5 percent of adjusted gross income above a threshold.

Employer Mandate

• Requires employers to offer their employees health care insurance, or make an insurance contribution on their behalf, starting in 2013.
• Exempts firms with payrolls of $500,000 or less.
• Subjects businesses that fail to provide coverage to penalties of up to 8 percent of their payroll.

Purchase of Coverage

Health Insurance Exchange

• Creates a federal exchange, to begin operation in 2013, that would allow individuals and small businesses to purchase health insurance from insurers participating in the exchange.
• Allows states to apply to operate their own state-based health insurance exchanges.

Public Option

• Requires the establishment of a public health insurance option within the insurance exchange by 2013.
• Directs the Health and Human Services Department to run the public option and negotiate with providers to determine rates.
• Requires those rates to be no lower than those under Medicare and no higher than the average for private plans.

Additional Options

• Authorizes loans to entities that want to create health insurance cooperatives.
• Permits states to enter into compacts that allow for the sale of insurance across state lines.

Affordability

Individual Subsidies

• Provides affordability credits to individuals and families with incomes of up to 400 percent of the federal poverty level.
• Requires that subsidies would be used to reduce premiums and out-of-pocket costs.

Small Businesses

• Provides tax credits for certain small businesses that offer health insurance to their employees.

Requirements for Insurance Companies

Pre-Existing Conditions

• Bars insurance companies from denying or reducing coverage based on pre-existing medical conditions, beginning in 2013.
• Restricts how long insurers can continue to limit coverage for pre-existing conditions until the full ban takes effect.
• Prohibits companies from considering domestic violence a pre-existing condition.

Coverage Caps

• Prohibits annual or lifetime coverage limits.

Premiums

• Limits variations on premiums based on the age of the beneficiary to a ratio of 2-to-1.
• Permits variations on premiums based on geography and family size.

Out-of-Pocket Expenses

• Limits annual out-of-pocket expenses to $5,000 for an individual and $10,000 for a family.
• Guarantees no out-of-pocket costs for preventive care.

Essential Benefits Package

• Requires all qualified health benefits plans to provide coverage that meets or exceeds the standards of an “essential benefits package.”
• Requires an essential benefits package to, at a minimum, cover hospitalization, outpatient hospital and clinic services, professional services of physicians and other health professionals, prescription drugs, rehabilitative services; mental health and substance use disorder services; preventive services, maternity care, well-baby and well-child care, and medical equipment.
• Establishes a Health Benefits Advisory Committee, chaired by the surgeon general, to make recommendations to HHS regarding the details of covered health benefits included in the essential benefits plan.

Medicare and Medicaid

Medicaid Expansion

• Expands eligibility for Medicaid by allowing enrollment for those making up to 150 percent of the poverty level, beginning in 2013.
• Beginning in 2015, states would pay 9 percent of costs associated with the expanded coverage.
• Requires Medicaid to cover newborns during the first 60 days of life.

Medicare Advantage

• Reduces payments under the Medicare Advantage program over a three-year period beginning in 2011.
• Makes the rates for Medicare Advantage the same as those for traditional fee-for-service Medicare by 2014.
• Provides bonus payments to insurance plans in the program that offer high-quality insurance plans in low-cost areas.

As part of the debate, Congressman Bill Pascrell, Jr., Co-Chairman of the Congressional Brain Injury Task Force, offered a statement including BIAA’s guiding principles for health care reform. Also included in the statement, which can be viewed by clicking on the link below, was language regarding payment initiatives such as the bundling of services.

http://www.biausa.org/elements/policy/2009/house_cr_statement_bp.pdf

The statement detailed BIAA’s position that “post-acute payment systems must facilitate, not impede, improvements in functional status of individuals with brain injury and their ability to return to their homes and communities. BIAA supports a deliberative planning process and rigorous pilot testing.”

Congressman Pascrell has been a true champion in the fight for securing access to care for persons with brain injury during the health care reform debate. Please take a minute to click on the link below and thank him for his dedication to this important issue:

http://pascrell.house.gov/contact/

It is also important to note that BIAA’s Business and Professional Council was integral in creating the content of BIAA’s health care reform guiding principles.

Now that the House has passed its measure, BIAA is monitoring Senate activity closely. Senate Majority Leader Harry Reid has alluded to Senate action on their leadership bill as soon as next week.

BIAA will alert grassroots advocates if action is needed.

As reported in a previous edition of Policy Corner, the Senate version of this year’s National Defense Authorization bill includes an amendment that authorizes the Secretary of Defense to carry out a pilot program for providing cognitive rehabilitation therapy services under TRICARE.

As the House and Senate meet to debate the differences in the two versions in order to craft a final bill, BIAA has increased awareness among House members serving on the Armed Services Committee of the amendment and its importance to returning service members sufferring from TBI.

This week, Congressman Bill Pascrell, Jr. and Congressman Todd Platts, co-chairs of the Congressional Brain Injury Task Force, sent a letter to members of both the House and Senate Armed Services Committee members urging their support in preserving this amendment in the final bill. A copy of the letter can be viewed on our web site, or by clicking the link below:

http://www.biausa.org/elements/policy/cognitive_rehabilitation_ndaa_letter.pdf

This week the Senate finance committee wrapped up debate on its version of a health care reform package. The committee now has finished debating the more than one hundred amendments offered to the bill. A final vote is possible next week, although the finance committee cautiously waits to hear the cost estimate of the measure from the congressional budget office.

BIAA will continue to monitor the situation as the legislation progresses.

In August, BIAA launched a pilot program dedicated to encouraging area brain injury survivors to become more effective self-advocates. The program included identifying likely targets, making appointments, participating in a day of meetings in Capitol Hill, and following up and maintaining relationships with Congressional staffters.

Due to the success of the program, BIAA will continue to offer the opportunity on a quarterly basis to survivors who would like to learn more about advocacy. Space is limited, so if you would like to participate and you live in the Washington, DC area, please send me an email so that I can begin assembling the next advocacy group.

President Obama made it clear Wednesday evening in a joint session speech that he is demanding health care reform action this year. With the spark given by the President’s address, Democrats are enthusiastically working to find a way past their differences over such issues as inclusion of a public insurance option.

This week, the Senate Finance Committee released an outline of their proposal that is set to be made public next week. BIAA has some concerns about the proposal and is contacting members of the committee to ensure comprehensive coverage in the full proposal. The Committee plans to mark up a bill the week of Sept. 21, 2009.

The House may vote on its bill in the coming weeks, though debate continues over what kind of public option it will contain.

Stay tuned for action alerts as legislation progresses!

On Thursday, July 30, 2009, the Senate Appropriations Committee approved its fiscal 2010 spending bill for Health, Education and Labor programs.

Currently, further details regarding TBI Act and TBI Model Systems of Care funding have not been released, however, BIAA will continue to monitor the appropriations process closely and will be sure to distribute grassroots action instructions when the bill is scheduled for Senate floor consideration.

In a year that has been bursting at the seams with important policy making and legislation affecting the brain injury community, BIAA would like to take a step back and thank our grassroots for the heavy lifting they have done in the past six months!

We would like to specifically recognize the most active members of our community. The twenty people listed below have sent the most messages to Capitol Hill in response to BIAA action alerts since their subscribership to Policy Corner. Thanks to these individuals and the entire grassroots community for making this year a successful policy year so far for BIAA. Keep up the good work!

Ashley Weiss, Steven Cash, Robert Edwards, Sherry Stock, Cozette Carlisle, Paula Daoutis, Denae Mcelliott, Pat Britz, Freda Arender, Phillip Clarkson, Harold Ellison, Donna Lewis, Denman Jarvis, JoAnne OBoy, Scott Gee, Roberta Jereb, Carrie Lear, Geofrey Lauer, Caroline Feller and Paul Folkert